Information about services that support children and young people with their health conditions
Displaying 21 - 30 of 33
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B&NES, Swindon, and Wiltshire Integrated Care Board (ICB)
Designated Clinical Officer Role (SEND)
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PANS PANDAS UK
| Tel: 07425 856 181
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition.
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Rainbow Trust Children's Charity
| Tel: 07825 601354
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal illness are eligible for our support and referrals can come from any source. We enable families to manage everyday life while caring for a sick child and to make the most of time together, providing expert, practical and emotional support via a Family Support Worker. Our support is flexible and adapted to the individual needs of the families we support. Rainbow Trust’s support can include short breaks from caring for a poorly child, support with hospital visits including transport to and from appointments, support for siblings and bereavement support. As a result of the Covid 19 pandemic, Rainbow Trust also offers virtual support to families which can include opportunities for children to play games and do arts and crafts activities on video calls. Please contact us for more information about the service available in the South West.
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REACT
Rapid effective assistance for children with potentially terminal illnesses.
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Royal Society for Blind Children
| Tel: 02031980225
RSBC are here to support you and your family if you have a blind or partially sighted child aged 0-25. We believe that children and young people need a strong family to be able to grow and flourish and sometimes when you receive a diagnosis that your child has sight loss, you, your child, and your family might need some extra support. From the moment you receive a diagnosis that your child has sight loss, if there is a change in vision, if your child or family are going through some changes that are difficult to manage or any other time when life just seems a bit tough, get in touch and let one of our Family Practitioners be there to support you.
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SENSE
We believe that every disabled person should have the opportunity to connect with others and be included in the world. We offer personalised, creative and flexible support at every stage of life, no matter how complex someone’s disability.
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Sensory Support Service
| Tel: 0117 903 8441
The Service provides support to children and young people (CYP) from birth to 25, with hearing loss and/or vision impairment, their families and educational setting. This includes deaf CYP, CYP who are blind or vision impaired and those with multi-sensory impairment (both vision and hearing loss). The service does not provide support to CYP with other sensory needs which are not related to vision or hearing loss. The service is based in Bristol but is provided across Bristol, South Gloucester, BaNES and North Somerset.
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Sibs: for brothers and sisters of disabled children and adults
Support for siblings of any age of a disabled brother or sister who has a disability, special educational needs or a long term condition.