Information about services that support children and young people with their health conditions
Displaying 21 - 30 of 34
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National Deaf Children's Society
| Tel: 0808 800 8880 (voice and text freephone helpline)
The National Deaf Children’s Society is the UK’s leading childhood deafness charity. We’re here for every deaf child who needs us, no matter what their level or type of deafness or how they communicate.
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B&NES, Swindon, and Wiltshire Integrated Care Board (ICB)
Designated Clinical Officer Role (SEND)
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PANS PANDAS UK
| Tel: 07425 856 181
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition.
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Rainbow Trust Children's Charity
| Tel: 07825 601354
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal illness are eligible for our support and referrals can come from any source. We enable families to manage everyday life while caring for a sick child and to make the most of time together, providing expert, practical and emotional support via a Family Support Worker. Our support is flexible and adapted to the individual needs of the families we support. Rainbow Trust’s support can include short breaks from caring for a poorly child, support with hospital visits including transport to and from appointments, support for siblings and bereavement support. As a result of the Covid 19 pandemic, Rainbow Trust also offers virtual support to families which can include opportunities for children to play games and do arts and crafts activities on video calls. Please contact us for more information about the service available in the South West.
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REACT
Rapid effective assistance for children with potentially terminal illnesses.
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Royal Society for Blind Children
| Tel: 02031980225
RSBC are here to support you and your family if you have a blind or partially sighted child aged 0-25. We believe that children and young people need a strong family to be able to grow and flourish and sometimes when you receive a diagnosis that your child has sight loss, you, your child, and your family might need some extra support. From the moment you receive a diagnosis that your child has sight loss, if there is a change in vision, if your child or family are going through some changes that are difficult to manage or any other time when life just seems a bit tough, get in touch and let one of our Family Practitioners be there to support you.
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Sensory Support Service
| Tel: 0117 903 8442
Support for children and young people who are deaf, have vision or multi-sensory impairment. Sensory support helps children and young people to learn at home, in early years settings and schools by working with families and a range of professionals from educational settings and services, health care, social care and voluntary organisations.
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Sibs: for brothers and sisters of disabled children and adults
Support for siblings of any age of a disabled brother or sister who has a disability, special educational needs or a long term condition.